Organiza: Asociación Angelito, Deficit De L-Carnitina.
Sede: Honorable Senado de la Nación, Salón Auditorio - Hipólito Yrigoyen 1710 CABA.
Horario: 14 a 19 HS
Disertantes:
Ministro de la Salud de la Provincia de Buenos Aires
- Dr. Alejandro Collia
- Lic. Claudia D'ippolito – La familia frente a la discapacidad
- Lic. Leonardo Gorbacz – Ley de Enfermedades Poco Frecuentes
- Sr. Juan Godoy - Reconocimiento
- Lic. Hugo Fiamberti – Derechos otorgados
- Dr. Raúl Uicich – Dificultades en el diagnóstico de las EPF.
- Dra. Liliana Alba – Consideraciones genéticas
- Dra. Gloria Fort – Desde el síntoma auditivo a la patología
- Dra. Lilia Mesa – Prevención enfermedades neuromusculares infantiles
- Dr. Alberto Dubrovsky – Enfermedad de Duchenne
- Dr. Guillermo Drelichman – Enfermedad de Gaucher
- Dra. Paula Rozenfeld – Enfermedad de Fabry
- Dr. Hernán Amartino – Enfermedad MPS
Actividad No Arancelada
Informes e Inscripción
asociacionangelito@gmail.com
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Eventos
/ Publicado el 7 de mayo de 2013
Jornada
V Jornada de Enfermedades Poco Frecuentes
V Jornada de Enfermedades Poco Frecuentes
8 de agosto de 2013
8 de agosto de 2013
Hipólito Yrigoyen 1710 -
CABA Buenos Aires, CABA Buenos Aires, Argentina
Organiza: Asociación Angelito, Deficit De L-Carnitina.
Sede: Honorable Senado de la Nación, Salón Auditorio - Hipólito Yrigoyen 1710 CABA.
Horario: 14 a 19 HS
Disertantes:
Ministro de la Salud de la Provincia de Buenos Aires
- Dr. Alejandro Collia
- Lic. Claudia D'ippolito – La familia frente a la discapacidad
- Lic. Leonardo Gorbacz – Ley de Enfermedades Poco Frecuentes
- Sr. Juan Godoy - Reconocimiento
- Lic. Hugo Fiamberti – Derechos otorgados
- Dr. Raúl Uicich – Dificultades en el diagnóstico de las EPF.
- Dra. Liliana Alba – Consideraciones genéticas
- Dra. Gloria Fort – Desde el síntoma auditivo a la patología
- Dra. Lilia Mesa – Prevención enfermedades neuromusculares infantiles
- Dr. Alberto Dubrovsky – Enfermedad de Duchenne
- Dr. Guillermo Drelichman – Enfermedad de Gaucher
- Dra. Paula Rozenfeld – Enfermedad de Fabry
- Dr. Hernán Amartino – Enfermedad MPS
Actividad No Arancelada
Informes e Inscripción
asociacionangelito@gmail.com
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