2º Jornada Nacional de la Asociación de Inmunodeficiencias Primarias
Organiza: Asociación de Ayuda al Paciente con Inmunodeficiencia Primaria
Fecha: Viernes 18 de Septiembre de 2009 de 12.30 a 16.30 hs
Sede: Aula Magna del Hospital de Pediatría Prof. Juan P. Garrahan, Pichincha Nº 1890
Entrada libre y gratuita.
Temario:
• Bienvenida a cargo de la presidente Roberta A. de Pena, invitando a pacientes y familiares a sumarse a la asociación.
• Presentación de la Asociación Ayuda al Paciente con Inmunodeficiencia Primaria: Pasado, Presente y Futuro. A cargo de Diego González Alonso
• Redes y Recursos para la cobertura de medicamentos y Tratamientos. Realizado por Servicio de Asistencia Social de los Hospitales.
• Aspectos Legales en la Discapacidad. Por la Dra. María Inés Bianco
• Transición de pacientes de centros pediátricos a centros de adultos. Taller Multiparticipativo.
• Presentaciones de la Lic Florencia Ugo a cargo de la transición del Hospital Garrahan.
• Presentación a cargo del Hospital Durán sobre la Transición.
• Presentación del Grupo de Adolescentes de la Asociación. A cargo de Patricia Llagostera, Diego Lenatz y Javier Mateo
• Presentaciones de los centros: Hospital Vilela, Hospital Sor María Ludovica de La Plata, Hospital Pedro Elizalde, Hospital Gutiérrez.
• Participación de otros actores. Psicología Institucional: Rol observacional de toda la jornada, generando registros que luego permitirán reflexionar y relevar sobre la experiencia y el impacto psicosocial entre los asistentes.
Informes e inscripción
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