Nuestra comunidad forma parte de la Asociación Internacional de Establecimiento de Prioridades para Glucogenosis Hepáticas (www.igsdpsp.com) donde se intenta averiguar cuales son las prioridades para las próximas investigaciones en Glucogenosis Hepáticas. Esta encuesta solamente le tomará un momento de su tiempo pero es muy importante.
De las respuestas de nuestra primera encuesta hemos formulado algunas preguntas de resumen. Necesitamos que nos digan cuál de estas preguntas de resumen son las más importantes para que la investigación responda en un futuro.
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