Un abordaje integral y multidisciplinario | 11 ENE 18

Insuficiencia cardíaca: estrategia de cuidados paliativos

En este artículo se muestra la necesidad de integrar los cuidados paliativos al tratamiento de la insuficiencia cardíaca
Autor/a: McIlvennan CK, Allen A Fuente: BMJ 2016;352:i1010 Palliative care in patients with heart failure
INDICE:  1. Página 1 | 2. Referencias

1.Yancy CW, Jessup M, Bozkurt B, et al. American College of Cardiology Foundation American Heart Association Task Force on Practice Guidelines. 2013 ACCF/AHA guideline for the management of heart failure: a report of the American College of Cardiology Foundation/American Heart Association Task Force on Practice Guidelines. J Am Coll Cardiol 2013;62:e147-239. doi:10.1016/j.jacc.2013.05.019 pmid:23747642. 2 Tu JV, Nardi L, Fang J, Liu J, 2.Khalid L, Johansen H. Canadian Cardiovascular Outcomes Research Team. National trends in rates of death and hospital admissions related to acute myocardial infarction, heart failure and stroke, 1994-2004. CMAJ 2009;180:E118-25. doi:10.1503/ cmaj.081197 pmid:19546444.
3. Roger VL, Weston SA, Redfield MM, et al. Trends in heart failure incidence and survival in a community-based population. JAMA 2004;292:344-50. doi:10.1001/jama.292.3.344 pmid:15265849.
4. Jhund PS, Macintyre K, Simpson CR, et al. Long-term trends in first hospitalization for heart failure and subsequent survival between 1986 and 2003: a population study of 5.1 million people. Circulation 2009;119:515- 23. doi:10.1161/CIRCULATIONAHA.108.812172 pmid:19153268.
5 Braunwald E. Shattuck lecture—cardiovascular medicine at the turn of the millennium: triumphs, concerns, and opportunities. N Engl J Med 1997;337:1360-9. doi:10.1056/ NEJM199711063371906 pmid:9358131.
6 Ponikowski P, Anker SD, AlHabib KF, et al. Heart failure: preventing disease and death worldwide. ESC Heart Failure 2014;1:4-25doi:10.1002/ ehf2.12005.
7 Dionne-Odom JN, Kono A, Frost J, et al. Translating and testing the ENABLE: CHF-PC concurrent palliative care model for older adults with heart failure and their family caregivers. J Palliat Med 2014;17:995-1004. doi:10.1089/jpm.2013.0680 pmid:25072240.
8 Kavalieratos D, Kamal AH, Abernethy AP, et al. Comparing unmet needs between community-based palliative care patients with heart failure and patients with cancer. J Palliat Med 2014;17:475-81. doi:10.1089/ jpm.2013.0526 pmid:24588568.
9 Greener DT, Quill T, Amir O, Szydlowski J, Gramling RE. Palliative care referral among patients hospitalized with advanced heart failure. J Palliat Med 2014;17:1115-20. doi:10.1089/jpm.2013.0658 pmid:25068475.
10 Gadoud A, Kane E, Macleod U, Ansell P, Oliver S, Johnson M. Palliative care among heart failure patients in primary care: a comparison to cancer patients using English family practice data. PLoS One 2014;9:e113188. doi:10.1371/journal.pone.0113188 pmid:25423169.
11 Shore S, Grau-Sepulveda MV, Bhatt DL, et al. Characteristics, treatments, and outcomes of hospitalized heart failure patients stratified by etiologies of cardiomyopathy. JACC Heart Fail 2015;3:906-16. doi:10.1016/j. jchf.2015.06.012 pmid:26454848.
12 Heidenreich PA, Albert NM, Allen LA, et al. American Heart Association Advocacy Coordinating Committee Council on Arteriosclerosis, Thrombosis and Vascular Biology Council on Cardiovascular Radiology and Intervention Council on Clinical Cardiology Council on Epidemiology and Prevention Stroke Council. Forecasting the impact of heart failure in the United States: a policy statement from the American Heart Association. Circ Heart Fail 2013;6:606-19. doi:10.1161/ HHF.0b013e318291329a pmid:23616602.
13 McMurray JJ, Petrie MC, Murdoch DR, Davie AP. Clinical epidemiology of heart failure: public and private health burden. Eur Heart J 1998;19(suppl P):9-16.pmid:9886707.
14 Bloomfield GS, Barasa FA, Doll JA, Velazquez EJ. Heart failure in sub- Saharan Africa. Curr Cardiol Rev 2013;9:157-73. doi:10.2174/157340 3X11309020008 pmid:23597299.
15 Levy D, Kenchaiah S, Larson MG, et al. Long-term trends in the incidence of and survival with heart failure. N Engl J Med 2002;347:1397-402. doi:10.1056/NEJMoa020265 pmid:12409541.
16 Chen J, Normand SL, Wang Y, Krumholz HM. National and regional trends in heart failure hospitalization and mortality rates for Medicare beneficiaries, 1998-2008. JAMA 2011;306:1669-78. doi:10.1001/ jama.2011.1474 pmid:22009099.
17 Carson P, Anand I, O’Connor C, et al. Mode of death in advanced heart failure: the Comparison of Medical, Pacing, and Defibrillation Therapies in Heart Failure (COMPANION) trial. J Am Coll Cardiol 2005;46:2329-34. doi:10.1016/j.jacc.2005.09.016 pmid:16360067.
18 Lloyd-Jones D, Adams RJ, Brown TM, et al. Writing Group Members American Heart Association Statistics Committee and Stroke Statistics Subcommittee. Heart disease and stroke statistics—2010 update: a report from the American Heart Association. Circulation 2010;121:e46-215. doi:10.1161/ CIRCULATIONAHA.109.192667 pmid:20019324.
19 Bocchi EA, Braga FG, Ferreira SM, et al. Sociedasde Brasileira de Cardiologia. III Brazilian guidelines on chronic heart failure (in Portuguese). Arq Bras Cardiol 2009;93(Suppl 1):3-70.pmid:20963312.
20 Neumann T, Biermann J, Erbel R, et al. Heart failure: the commonest reason for hospital admission in Germany: medical and economic perspectives. Dtsch Arztebl Int 2009;106:269-75.pmid:19547628.
21 Goodman DC, Esty AR, Fisher ES, Chang CH. Trends and variation in end-of-life care for Medicare beneficiaries with severe chronic illness. http:// www.rwjf.org/en/library/research/2011/04/trends-and-variation-in-end-of-life-care-for-medicare-beneficiar.html.
22 World Health Organization. WHO definition of palliative care. http://www. who.int/cancer/palliative/definition/en/.
23 National Hospice and Palliative Care Organization. Facts on hospice and palliative care. http://www.nhpco.org/hospice-statistics-research-press-room/facts-hospice-and-palliative-care.
24 Von Gunten CF. Secondary and tertiary palliative care in US hospitals. JAMA 2002;287:875-81. doi:10.1001/ jama.287.7.875 pmid:11851580.
25 Worldwide Palliative Care Alliance. Global atlas of palliative care at the end of life. http://www.who.int/nmh/Global_Atlas_of_Palliative_Care.pdf.
26 Smith S, Brick A, O’Hara S, Normand C. Evidence on the cost and cost-effectiveness of palliative care: a literature review. Palliat Med 2014;28:130-50. doi:10.1177/0269216313493466 pmid:23838378.
27 May P, Normand C, Morrison RS. Economic impact of hospital inpatient palliative care consultation: review of current evidence and directions for future research. J Palliat Med 2014;17:1054-63. doi:10.1089/ jpm.2013.0594 pmid:24984168.
28 Morrison RS, Dietrich J, Ladwig S, et al. Palliative care consultation teams cut hospital costs for Medicaid beneficiaries. Health Aff (Millwood) 2011;30:454-63. doi:10.1377/hlthaff.2010.0929 pmid:21383364.
29 Laribi S, Aouba A, Nikolaou M, et al. GREAT network. Trends in death attributed to heart failure over the past two decades in Europe. Eur J Heart Fail 2012;14:234-9. doi:10.1093/eurjhf/hfr182 pmid:22237388.
30 Smith TJ, Coyne P, Cassel B, Penberthy L, Hopson A, Hager MA. A high-volume specialist palliative care unit and team may reduce in-hospital end-of-life care costs. J Palliat Med 2003;6:699-705. doi:10.1089/109662103322515202 pmid:14622449.
31 Tse DM, Chan KS, Lam WM, Leu K, Lam PT. The impact of palliative care on cancer deaths in Hong Kong: a retrospective study of 494 cancer deaths. Palliat Med 2007;21:425-33. doi:10.1177/0269216307079825 pmid:17901102.
32 Gozalo P, Plotzke M, Mor V, Miller SC, Teno JM. Changes in Medicare costs with the growth of hospice care in nursing homes. N Engl J Med 2015;372:1823-31. doi:10.1056/NEJMsa1408705 pmid:25946281.
33 Taylor DH Jr, , Ostermann J, Van Houtven CH, Tulsky JA, Steinhauser K. What length of hospice use maximizes reduction in medical expenditures near death in the US Medicare program?Soc Sci Med 2007;65:1466-78. doi:10.1016/j.socscimed.2007.05.028 pmid:17600605.
34 Bekelman DB, Rumsfeld JS, Havranek EP, et al. Symptom burden, depression, and spiritual well-being: a comparison of heart failure and advanced cancer patients. J Gen Intern Med 2009;24:592-8. doi:10.1007/s11606-009-0931-y pmid:19288160.
35 Setoguchi S, Glynn RJ, Stedman M, Flavell CM, Levin R, Stevenson LW. Hospice, opiates, and acute care service use among the elderly before death from heart failure or cancer. Am Heart J 2010;160:139-44. doi:10.1016/j.ahj.2010.03.038 pmid:20598984.
36 Tanvetyanon T, Leighton JC. Life-sustaining treatments in patients who died of chronic congestive heart failure compared with metastatic cancer. Crit Care Med 2003;31:60-4. doi:10.1097/00003246-200301000- 00009 pmid:12544994.
37 American Heart Association/American Stroke Assocation. Principles for palliative care. https://www.heart.org/idc/groups/ahaecc-public/@ wcm/@adv/documents/downloadable/ucm_467599.pdf.
38 Jordhøy MS, Fayers P, Saltnes T, Ahlner-Elmqvist M, Jannert M, Kaasa S. A palliative-care intervention and death at home: a cluster randomised trial. Lancet 2000;356:888-93. doi:10.1016/S0140-6736(00)02678- 7 pmid:11036893.
39 Allen LA, Stevenson LW, Grady KL, et al. American Heart Association Council on Quality of Care and Outcomes Research Council on Cardiovascular Nursing Council on Clinical Cardiology Council on Cardiovascular Radiology and Intervention Council on Cardiovascular Surgery and Anesthesia. Decision making in advanced heart failure: a scientific statement from the American Heart Association. Circulation 2012;125:1928-52. doi:10.1161/CIR.0b013e31824f2173 pmid:22392529.
40 Lanken PN, Terry PB, Delisser HM, et al. ATS End-of-Life Care Task Force. An official American Thoracic Society clinical policy statement: palliative care for patients with respiratory diseases and critical illnesses. Am J Respir Crit Care Med 2008;177:912-27. doi:10.1164/rccm.200605- 587ST pmid:18390964.
41 Jaarsma T, Beattie JM, Ryder M, et al. Advanced Heart Failure Study Group of the HFA of the ESC. Palliative care in heart failure: a position statement from the palliative care workshop of the Heart Failure Association of the European Society of Cardiology. Eur J Heart Fail 2009;11:433-43. doi:10.1093/eurjhf/hfp041 pmid:19386813.
42 McMurray JJ, Adamopoulos S, Anker SD, et al. ESC Committee for Practice Guidelines. ESC Guidelines for the diagnosis and treatment of acute and chronic heart failure 2012: The Task Force for the Diagnosis and Treatment of Acute and Chronic Heart Failure 2012 of the European Society of Cardiology. Developed in collaboration with the Heart Failure Association (HFA) of the ESC. Eur Heart J 2012;33:1787-847. doi:10.1093/eurheartj/ ehs104 pmid:22611136.
43 Bekelman DB, Nowels CT, Allen LA, Shakar S, Kutner JS, Matlock DD. Outpatient palliative care for chronic heart failure: a case series. J Palliat Med 2011;14:815-21. doi:10.1089/jpm.2010.0508 pmid:21554021.
44 Rumsfeld JS, Alexander KP, Goff DC Jr, et al. American Heart Association Council on Quality of Care and Outcomes Research, Council on Cardiovascular and Stroke Nursing, Council on Epidemiology and Prevention, Council on Peripheral Vascular Disease, and Stroke Council. Cardiovascular health: the importance of measuring patient-reported health status: a scientific statement from the American Heart Association. Circulation 2013;127:2233-49. doi:10.1161/ CIR.0b013e3182949a2e pmid:23648778.
45 Heo S, Doering LV, Widener J, Moser DK. Predictors and effect of physical symptom status on health-related quality of life in patients with heart failure. Am J Crit Care 2008;17:124-32.pmid:18310649.
46 Iqbal J, Francis L, Reid J, Murray S, Denvir M. Quality of life in patients with chronic heart failure and their carers: a 3-year follow-up study assessing hospitalization and mortality. Eur J Heart Fail 2010;12:1002-8. doi:10.1093/eurjhf/hfq114 pmid:20615920.
47 Bekelman DB, Havranek EP, Becker DM, et al. Symptoms, depression, and quality of life in patients with heart failure. J Card Fail 2007;13:643-8. doi:10.1016/j.cardfail.2007.05.005 pmid:17923356.
48 Saczynski JS, Go AS, Magid DJ, et al. Patterns of comorbidity in older adults with heart failure: the Cardiovascular Research Network PRESERVE study. J Am Geriatr Soc 2013;61:26-33. doi:10.1111/ jgs.12062 pmid:23311550.
49 Wong CY, Chaudhry SI, Desai MM, Krumholz HM. Trends in comorbidity, disability, and polypharmacy in heart failure. Am J Med 2011;124:136-43. doi:10.1016/j.amjmed.2010.08.017 pmid:21295193.
50 Fried LP, Tangen CM, Walston J, et al. Cardiovascular Health Study Collaborative Research Group. Frailty in older adults: evidence for a phenotype. J Gerontol A Biol Sci Med Sci 2001;56:M146-57. doi:10.1093/gerona/56.3.M146 pmid:11253156.
51 Chaudhry SI, Wang Y, Gill TM, Krumholz HM. Geriatric conditions and subsequent mortality in older patients with heart failure. J Am Coll Cardiol 2010;55:309-16. doi:10.1016/j.jacc.2009.07.066 pmid:20117435.
52 Cacciatore F, Abete P, Mazzella F, et al. Frailty predicts long-term mortality in elderly subjects with chronic heart failure. Eur J Clin Invest 2005;35:723- 30. doi:10.1111/j.1365-2362.2005.01572.x pmid:16313247.
53 Afilalo J, Alexander KP, Mack MJ, et al. Frailty assessment in the cardiovascular care of older adults. J Am Coll Cardiol 2014;63:747-62. doi:10.1016/j.jacc.2013.09.070 pmid:24291279.
54 Nordgren L, Sörensen S. Symptoms experienced in the last six months of life in patients with end-stage heart failure. Eur J Cardiovasc Nurs 2003;2:213-7. doi:10.1016/S1474-5151(03)00059- 8 pmid:14622629.
55 Faris R, Purcell H, Henein MY, Coats AJ. Clinical depression is common and significantly associated with reduced survival in patients with non-ischaemic heart failure. Eur J Heart Fail 2002;4:541-51. doi:10.1016/ S1388-9842(02)00101-0 pmid:12167395.
56 Oxberry SG, Torgerson DJ, Bland JM, Clark AL, Cleland JG, Johnson MJ. Short-term opioids for breathlessness in stable chronic heart failure: a randomized controlled trial. Eur J Heart Fail 2011;13:1006-12. doi:10.1093/eurjhf/hfr068 pmid:21712288.
57 Johnson MJ, McDonagh TA, Harkness A, McKay SE, Dargie HJ. Morphine for the relief of breathlessness in patients with chronic heart failure—a pilot study. Eur J Heart Fail 2002;4:753-6. doi:10.1016/S1388- 9842(02)00158-7 pmid:12453546.
58 O’Connor CM, Jiang W, Kuchibhatla M, et al. SADHART-CHF Investigators. Safety and efficacy of sertraline for depression in patients with heart failure: results of the SADHART-CHF (Sertraline Against Depression and Heart Disease in Chronic Heart Failure) trial. J Am Coll Cardiol 2010;56:692-9. doi:10.1016/j.jacc.2010.03.068 pmid:20723799.
59 Freedland KE, Carney RM, Rich MW, Steinmeyer BC, Rubin EH. Cognitive behavior therapy for depression and self-care in heart failure patients: a randomized clinical trial. JAMA Intern Med 2015;175:1773-82. doi:10.1001/jamainternmed.2015.5220 pmid:26414759.
60 Cheang MH, Rose G, Cheung CC, Thomas M. Current challenges in palliative care provision for heart failure in the UK: a survey on the perspectives of palliative care professionals. Open Heart 2015;2:e000188. doi:10.1136/ openhrt-2014-000188 pmid:25628893.
61 Allen LA, Yager JE, Funk MJ, et al. Discordance between patient-predicted and model-predicted life expectancy among ambulatory patients with heart failure. JAMA 2008;299:2533-42. doi:10.1001/ jama.299.21.2533 pmid:18523222.
62 Meyer TE, Kiernan MS, McManus DD, Shih J. Decision-making under uncertainty in advanced heart failure. Curr Heart Fail Rep 2014;11:188- 96. doi:10.1007/s11897-014-0195-7 pmid:24691659.
63 Kavalieratos D, Mitchell EM, Carey TS, et al. “Not the ‘grim reaper service’”: an assessment of provider knowledge, attitudes, and perceptions regarding palliative care referral barriers in heart failure. J Am Heart Assoc 2014;3:e000544. doi:10.1161/ JAHA.113.000544 pmid:24385453.
64 Apatira L, Boyd EA, Malvar G, et al. Hope, truth, and preparing for death: perspectives of surrogate decision makers. Ann Intern Med 2008;149:861-8. doi:10.7326/0003-4819-149-12-200812160- 00005 pmid:19075205.
65 Golin CE, Wenger NS, Liu H, et al. A prospective study of patient-physician communication about resuscitation. J Am Geriatr Soc 2000;48(Suppl):S52-60. doi:10.1111/j.1532-5415.2000. tb03141.x pmid:10809457.
66 Caldwell PH, Arthur HM, Demers C. Preferences of patients with heart failure for prognosis communication. Can J Cardiol 2007;23:791-6. doi:10.1016/S0828-282X(07)70829-2 pmid:17703257.
67 Harding R, Selman L, Beynon T, et al. Meeting the communication and information needs of chronic heart failure patients. J Pain Symptom Manage 2008;36:149-56. doi:10.1016/j. jpainsymman.2007.09.012 pmid:18599259.
68 Dunlay SM, Foxen JL, Cole T, et al. A survey of clinician attitudes and self-reported practices regarding end-of-life care in heart failure. Palliat Med 2015;29:260-7. doi:10.1177/0269216314556565 pmid:25488909.
69 Krumholz HM, Phillips RS, Hamel MB, et al. Study to Understand Prognoses and Preferences for Outcomes and Risks of Treatments. Resuscitation preferences among patients with severe congestive heart failure: results from the SUPPORT project. Circulation 1998;98:648-55. doi:10.1161/01.CIR.98.7.648 pmid:9715857.
70 Göhler A, Januzzi JL, Worrell SS, et al. A systematic meta-analysis of the efficacy and heterogeneity of disease management programs in congestive heart failure. J Card Fail 2006;12:554-67. doi:10.1016/j. cardfail.2006.03.003 pmid:16952790.
71 Grady KL, Dracup K, Kennedy G, et al. Team management of patients with heart failure: a statement for healthcare professionals from the Cardiovascular Nursing Council of the American Heart Association. Circulation 2000;102:2443-56. doi:10.1161/01. CIR.102.19.2443 pmid:11067802.
72 Center to Advance Palliative Care. Growth of palliative care in US hospitals: 2012 snapshot. https://media.capc.org/filer_public/e1/c9/ e1c93c86-7fad-4aa6-b5e0-7757ef313da0/capc-growth-analysis-snapshot-2011.pdf.
73 Nazarian S, Maisel WH, Miles JS, Tsang S, Stevenson LW, Stevenson WG. Impact of implantable cardioverter defibrillators on survival and recurrent hospitalization in advanced heart failure. Am Heart J 2005;150:955-60. doi:10.1016/j.ahj.2005.01.012 pmid:16290971.
74 Matlock DD, Nowels CT, Masoudi FA, et al. Patient and cardiologist perceptions on decision making for implantable cardioverter-defibrillators: a qualitative study. Pacing Clin Electrophysiol 2011;34:1634-44. doi:10.1111/j.1540-8159.2011.03237.x pmid:21972983.
75 McIlvennan CK, Allen LA, Nowels C, Brieke A, Cleveland JC, Matlock DD. Decision making for destination therapy left ventricular assist devices: “there was no choice” versus “I thought about it an awful lot”. Circ Cardiovasc Qual Outcomes 2014;7:374-80. doi:10.1161/ CIRCOUTCOMES.113.000729 pmid:24823949.
76 McIlvennan CK, Jones J, Allen LA, et al. Decision-making for destination therapy left ventricular assist devices: implications for caregivers. Circ Cardiovasc Qual Outcomes 2015;8:172-8. doi:10.1161/ CIRCOUTCOMES.114.001276 pmid:25759442.
77 Feldman D, Pamboukian SV, Teuteberg JJ, et al. International Society for Heart and Lung Transplantation. The 2013 International Society for Heart and Lung Transplantation guidelines for mechanical circulatory support: executive summary. J Heart Lung Transplant 2013;32:157-87. doi:10.1016/j.healun.2012.09.013 pmid:23352391.
78 Joint Commission. Comprehensive certification manual for disease-specific care including advanced programs for disease-specific care certification. 2015. http://www.jcrinc.com/2016-certification-manuals/2016-comprehensive-certification-manual-for-disease-specific-care-including-advanced-programs-for-dsc-certification/
79 Centers for Medicare and Medicaid Services. Decision memo for ventricular assist devices for bridge-to-transplant and destination therapy. https://www.cms.gov/medicare-coverage-database/details/ nca-decision-memo.aspx?NCAId=268&NcaName=Ventricular+Assist+De vices+for+Bridge-to-Transplant+and+Destination+Therapy&MEDCACId=6 5&IsPopup=y&bc=AAAAAAAACAAAAA%3d%3d.
80 McIlvennan CK, Magid KH, Ambardekar AV, Thompson JS, Matlock DD, Allen LA. Clinical outcomes after continuous-flow left ventricular assist device: a systematic review. Circ Heart Fail 2014;7:1003-13. doi:10.1161/CIRCHEARTFAILURE.114.001391 pmid:25294625.
81 Matlock DD, Stevenson LW. Life-saving devices reach the end of life with heart failure. Prog Cardiovasc Dis 2012;55:274-81. doi:10.1016/j. pcad.2012.10.007 pmid:23217431.
82 Hill L, McIlfatrick S, Taylor B, Dixon L, Harbinson M, Fitzsimons D. Patients’ perception of implantable cardioverter defibrillator deactivation at the end of life. Palliat Med 2015;29:310-23. doi:10.1177/0269216314550374 pmid:25239128.
83 Kirkpatrick JN, Gottlieb M, Sehgal P, Patel R, Verdino RJ. Deactivation of implantable cardioverter defibrillators in terminal illness and end of life care. Am J Cardiol 2012;109:91-4. doi:10.1016/j. amjcard.2011.08.011 pmid:21943937.
84 Hill L, McIlfatrick S, Taylor BJ, et al. Implantable cardioverter defibrillator (ICD) deactivation discussions: reality versus recommendations. Eur J Cardiovasc Nurs 2015; online 22 Apr.pmid:25903823.
85 Goldstein N, Carlson M, Livote E, Kutner JS. Brief communication. Management of implantable cardioverter-defibrillators in hospice: a nationwide survey. Ann Intern Med 2010;152:296-9. doi:10.7326/0003-4819-152-5-201003020-00007 pmid:20194235.
86 Kraynik SE, Casarett DJ, Corcoran AM. Implantable cardioverter defibrillator deactivation: a hospice quality improvement initiative. J Pain Symptom Manage 2014;48:471-7. doi:10.1016/j. jpainsymman.2013.09.010 pmid:24480530.
87 Pasalic D, Gazelka HM, Topazian RJ, et al. Palliative care consultation and associated end-of-life care after pacemaker or implantable cardioverter-defibrillator deactivation. Am J Hosp Palliat Care 2015; online 12 Jul;104 9909115595017.pmid:26169518.
88 McIlvennan CK, Jones J, Allen LA, Swetz KM, Nowels C, Matlock DD. Bereaved caregiver perspectives on the end-of-life experience with a left ventricular assist device. JAMA Intern Med 2016; [forthcoming].
89 Swetz KM, Cook KE, Ottenberg AL, Chang N, Mueller PS. Clinicians’ attitudes regarding withdrawal of left ventricular assist devices in patients approaching the end of life. Eur J Heart Fail 2013;15:1262-6. doi:10.1093/eurjhf/hft094 pmid:23744792.
90 Swetz KM, Ottenberg AL, Freeman MR, Mueller PS. Palliative care and end-of-life issues in patients treated with left ventricular assist devices as destination therapy. Curr Heart Fail Rep 2011;8:212-8. doi:10.1007/ s11897-011-0060-x pmid:21538039.
91 Brush S, Budge D, Alharethi R, et al. End-of-life decision making and implementation in recipients of a destination left ventricular assist device. J Heart Lung Transplant 2010;29:1337-41. doi:10.1016/j. healun.2010.07.001 pmid:20817564.
92 Fendler TJ, Swetz KM, Allen LA. Team-based palliative and end-of-life care for heart failure. Heart Fail Clin 2015;11:479-98. doi:10.1016/j. hfc.2015.03.010 pmid:26142643.
93 Jaarsma T, Brons M, Kraai I, Luttik ML, Stromberg A. Components of heart failure management in home care; a literature review. Eur J Cardiovasc Nurs 2013;12:230-41. doi:10.1177/1474515112449539 pmid:22707520.
94 Segal DI, O’Hanlon D, Rahman N, McCarthy DJ, Gibbs JS. Incorporating palliative care into heart failure management: a new model of care. Int J Palliat Nurs 2005;11:135-6. doi:10.12968/ ijpn.2005.11.3.18033 pmid:15966456.
95 Aiken LS, Butner J, Lockhart CA, Volk-Craft BE, Hamilton G, Williams FG. Outcome evaluation of a randomized trial of the PhoenixCare intervention: program of case management and coordinated care for the seriously chronically ill. J Palliat Med 2006;9:111-26. doi:10.1089/ jpm.2006.9.111 pmid:16430351.
96 Daley A, Matthews C, Williams A. Heart failure and palliative care services working in partnership: report of a new model of care. Palliat Med 2006;20:593-601. doi:10.1177/0269216306071060 pmid:17060252.
97 Lupu D. American Academy of Hospice and Palliative Medicine Workforce Task Force. Estimate of current hospice and palliative medicine physician workforce shortage. J Pain Symptom Manage 2010;40:899-911. doi:10.1016/j. jpainsymman.2010.07.004 pmid:21145468. 98 American Board of Internal Medicine. Hospice and palliative care policies. http://www.abim.org/certification/policies/ internal-medicine-subspecialty-policies/hospice-palliative-medicine. aspx.
99 Sabatino CP. The evolution of health care advance planning law and policy. Milbank Q 2010;88:211-39. doi:10.1111/j.1468- 0009.2010.00596.x pmid:20579283.
100 Dunlay SM, Swetz KM, Mueller PS, Roger VL. Advance directives in community patients with heart failure. Circ Cardiovasc Qual Outcomes 2012;5:283-9. doi:10.1161/ CIRCOUTCOMES.112.966036 pmid:22581852.
101 Evangelista LS, Motie M, Lombardo D, Ballard- Hernandez J, Malik S, Liao S. Does preparedness planning improve attitudes and completion of advance directives in patients with symptomatic heart failure?J Palliat Med 2012;15:1316-20. doi:10.1089/jpm.2012.0228 pmid:22989252.
102 Swetz KM, Freeman MR, AbouEzzeddine OF, et al. Palliative medicine consultation for preparedness planning in patients receiving left ventricular assist devices as destination therapy. Mayo Clin Proc 2011;86:493-500. doi:10.4065/mcp.2010.0747 pmid:21628614.
103 Centers for Medicare and Medicaid Services. Proposed policy, payment, and quality provisions changes to the Medicare physician fee schedule for calendar year 2016. https://www.cms.gov/ Newsroom/MediaReleaseDatabase/Fact-sheets/2015-Fact-sheets-items/2015-10-30-2.html
104 Krumholz HM. Patient-centered medicine: the next phase in health care. Circ Cardiovasc Qual Outcomes 2011;4:374-5. doi:10.1161/ CIRCOUTCOMES.111.962217 pmid:21772000.
105 Institute of Medicine. Crossing the quality chasm: a new health system for the 21st century.National Academies Press, 2001.
106 Frosch DL, Kaplan RM. Shared decision making in clinical medicine: past research and future directions. Am J Prev Med 1999;17:285-94. doi:10.1016/S0749-3797(99)00097-5 pmid:10606197.
107 Elwyn G, Edwards A, Kinnersley P, Grol R. Shared decision making and the concept of equipoise: the competences of involving patients in healthcare choices. Br J Gen Pract 2000;50:892-9.pmid: 11141876.
108 Charles C, Gafni A, Whelan T. Shared decision-making in the medical encounter: what does it mean? (or it takes at least two to tango). Soc Sci Med 1997;44:681-92. doi:10.1016/S0277-9536(96)00221- 3 pmid:9032835.
109 Elwyn G, Frosch D, Volandes AE, Edwards A, Montori VM. Investing in deliberation: a definition and classification of decision support interventions for people facing difficult health decisions. Med Decis Making 2010;30:701-11. doi:10.1177/0272989X10386231 pmid:21088131.
110 University of Ottawa. Ottawa decision support framework. 2010. http:// decisionaid.Ohri.Ca/docs/develop/odsf.Pdf
111 Austin CA, Mohottige D, Sudore RL, Smith AK, Hanson LC. Tools to promote shared decision making in serious illness: a systematic review. JAMA Intern Med 2015;175:1213-21. doi:10.1001/ jamainternmed.2015.1679 pmid:25985438.
112 Thompson JS, Matlock DD, McIlvennan CK, Jenkins AR, Allen LA. Development of a decision aid for patients with advanced heart failure considering a destination therapy left ventricular assist device. JACC Heart Fail 2015;3:965-76. doi:10.1016/j. jchf.2015.09.007 pmid:26671675.
113 Matlock DD, Spatz ES. Design and testing of tools for shared decision making. Circ Cardiovasc Qual Outcomes 2014;7:487-92. doi:10.1161/ CIRCOUTCOMES.113.000289 pmid:24714602.
114 Halpern SD. Toward evidence-based end-of-life care. N Engl J Med 2015;373:2001-3. doi:10.1056/NEJMp1509664 pmid:26465826.
115 Hickman SE, Keevern E, Hammes BJ. Use of the physician orders for life-sustaining treatment program in the clinical setting: a systematic review of the literature. J Am Geriatr Soc 2015;63:341-50. doi:10.1111/ jgs.13248 pmid:25644280.
116 Mentz RJ, Tulsky JA, Granger BB, et al. The palliative care in heart failure trial: rationale and design. Am Heart J 2014;168:645-51. doi:10.1016/j.ahj.2014.07.018 pmid:25440791.
117 Bekelman DB, Hooker S, Nowels CT, et al. Feasibility and acceptability of a collaborative care intervention to improve symptoms and quality of life in chronic heart failure: mixed methods pilot trial. J Palliat Med 2014;17:145-51. doi:10.1089/jpm.2013.0143 pmid:24329424.
118 ClinicalTrials.gov. Collaborative care to alleviate symptoms and adjust to illness in chronic heart failure (CASA) trial. https://clinicaltrials.gov/ct2/ show/NCT01739686
119 Köberich S, Ziehm J, Farin E, Becker G. Barriers and facilitators to palliative care of patients with chronic heart failure in Germany: a study protocol. J Public Health Res 2015;4:556. doi:10.4081/ jphr.2015.556 pmid:26425500.
120 Coalition to Transform Advanced Care. Key initiatives. http://www. thectac.org/key-initiatives/.
121 Halpern SD, Emanuel EJ. Can the United States buy better advance care planning?Ann Intern Med 2015;162:224-5. doi:10.7326/M14- 2476 pmid:25486099.
122 Gundersen Health System. Respecting choices advance care planning. http://www.gundersenhealth.org/respecting-choices.
123 Hammes BJ, Rooney BL. Death and end-of-life planning in one midwestern community. Arch Intern Med 1998;158:383-90. doi:10.1001/archinte.158.4.383 pmid:9487236.
124 Hammes BJ, Rooney BL, Gundrum JD. A comparative, retrospective, observational study of the prevalence, availability, and specificity of advance care plans in a county that implemented an advance care planning microsystem. J Am Geriatr Soc 2010;58:1249-55. doi:10.1111/j.1532-5415.2010.02956.x pmid:20649688.



Para ver los comentarios de sus colegas o para expresar su opinión debe ingresar con su cuenta de IntraMed.

Términos y condiciones de uso | Política de privacidad | Todos los derechos reservados | Copyright 1997-2024