¿Qué es la toma de decisiones anticipadas en salud?

1 Hayhoe B, Howe A. Advance care planning under the Mental Capacity Act 2005 in primary care. Br J Gen Pract 2011; 61:e537-41.
2 Department of Health. End of life care strategy: promoting high quality care for adults at the end of their life. 2008. https://www.gov.uk/government/publications/end-of-life-carestrategy-promoting-high-quality-care-for-adults-at-the-end-of-their-life.
3 NHS National End of Life Care Programme. Capacity, care planning and advance care planning in life limiting illness. A guide for health and social care staff. Department of Health, 2011. www.endoflifecare.nhs.uk/assets/downloads/ACP_booklet_2011_Final_1.
pdf.
4 National Archives. The Mental Capacity Act 2005. www.legislation.gov.uk/ukpga/2005/9/ contents.
5 Royal College of Physicians. Advance care planning. Concise Guidance to Good Practice series. No 12. 2009. www.rcplondon.ac.uk/sites/default/files/concise-advance-careplanning-2009.pdf.
6 Barnes K, Jones L, Tookman A, King M. Acceptability of an advance care planning interview schedule: a focus group study. Palliat Med 2007; 21:23-8.
7 Billings JA. The need for safeguards in advance care planning. J Gen Intern Med 2012; 27:595-600.
8 Mahon MM. An advance directive in two questions. J Pain Symptom Manage 2011;41:801-7.
9 Fried TR, O’Leary JR. Using the experiences of bereaved caregivers to inform patient and caregiver-centered advance care planning. J Gen Intern Med 2008; 23:1602-7.
10 Australian Medical Association. The role of the medical practitioner in advance care planning. 2006. https://ama.com.au/position-statement/role-medical-practitioner-advancecare-planning-2006.
11 American Medical Association. Opinion 2.191—advance care planning. 2011. www.amaassn.
org//ama/pub/physician-resources/medical-ethics/code-medical-ethics/opinion2191.page.
12 The SUPPORT Principal Investigators. A controlled trial to improve care for seriously ill hospitalized patients. The study to understand prognoses and preferences for outcomes and risks of treatments (SUPPORT). JAMA 1995; 274:1591-8.
13 Perkins HS. Controlling death: the false promise of advance directives. Ann Intern Med 2007; 147:51-7.
14 Tonelli MR. Pulling the plug on living wills. A critical analysis of advance directives. Chest 1996; 110:816-22.
15 Schneiderman LJ, Kronick R, Kaplan RM, Anderson JP, Langer RD. Effects of offering advance directives on medical treatments and costs. Ann Intern Med 1992; 117:599-606.
16 Goodman MD, Tarnoff M, Slotman GJ. Effect of advance directives on the management of elderly critically ill patients. Crit Care Med 1998; 26:701-4.
17 Robinson L, Dickinson C, Rousseau N, Beyer F, Clark A, Hughes J, et al. A systematic review of the effectiveness of advance care planning interventions for people with cognitive impairment and dementia. Age Ageing 2012; 41:263-9.
18 Wright AA, Zhang B, Ray A, Mack JW, Trice E, Balboni T, et al. Associations between end-of-life discussions, patient mental health, medical care near death, and caregiver bereavement adjustment. JAMA 2008; 300:1665-73.
19 O’Malley AJ, Caudry DJ, Grabowski DC. Predictors of nursing home residents’ time to hospitalisation. Health Serv Res 2011; 46:82-104.
20 Molloy DW, Guyatt GH, Russo R, Goeree R, O’Brien BJ, Bédard M, et al. Systematic implementation of an advance directive program in nursing homes: a randomized controlled trial. JAMA 2000; 283:1437-44.
21 Silveira MJ, Kim SY, Langa KM. Advance directives and outcomes of surrogate decision making before death. N Engl J Med 2010; 362:1211-8.
22 Mack JW, Weeks JC, Wright AA, Block SD, Prigerson HG. End-of-life discussions, goal attainment, and distress at the end of life: predictors and outcomes of receipt of care consistent with preferences. J Clin Oncol 2010; 28:1203-8.
23 Abel J, Pring A, Rich A, Malik T, Verne J. The impact of advance care planning of place of death, a hospice retrospective cohort study. BMJ Support Palliat Care 2013; 3:168-73.
24 Rhee JJ, Zwar NA, Kemp LA. Advance care planning and interpersonal relationships: a two-way street. Fam Pract 2013; 30:219-26.
25 Detering KM, Hancock AD, Reade MC, Silvester W. The impact of advance care planning on end of life care in elderly patients: randomised controlled trial. BMJ 2010; 340:c1345.
26 Lorenz KA, Lynn J, Dy SM, Shugarman LR, Wilkinson A, Mularski RA, et al. Evidence for improving palliative care at the end of life: a systematic review. Ann Intern Med 2008; 148:147-59.
27 Pautex S, Hermann FR, Zulian GB. Role of advance directives in palliative care units: a prospective study. Palliat Med 2008; 22:835-41.
28 Kaldjian LC, Curtis AE, Shinkunas LA, Cannon KT. Goals of care toward the end of life: a structured literature review. Am J Hosp Palliat Care 2008-2009; 25:501-11.
29 Levi BH, Dellasega C, Whitehead M, Green MJ. What influences individuals to engage in advance care planning? Am J Hosp Palliat Care 2010; 27:306-12.
30 Piers RD, van Eechoud IJ, Van Camp S, Grypdonck M, Deveugele M, Verbeke N, et al. Advance care planning in terminally ill and frail older persons. Patient Educ Couns 2013; 90:323-9.
31 Rhee JJ, Zwar NA, Kemp LA. Uptake and implementation of advance care planning in Australia: findings of key informant interviews. Aust Health Rev 2012; 36:98-104.
32 Knauft E, Nielsen EL, Engelberg RA, Patrick DL, Curtis JR. Barriers and facilitators to end-of-life care communication for patients with COPD. Chest 2005; 127:2188-96.
33 Schickedanz AD, Schillinger D, Landefeld CS, Knight SJ, Williams BA, Sudore RL. A clinical framework for improving the advance care planning process: start with patients’ self-identified barriers. J Am Geriatr Soc 2009; 57:31-9.
34 Halpern S. Shaping end-of-life care: behavioral economics and advance directives. Semin Respir Crit Care Med 2012; 33:393-400.
35 Dening KH, Jones L. Sampson EL. Preferences for end-of-life care: a nominal group study of people with dementia and their family carers. Palliat Med 2013; 27:409-17.
36 Gott M, Gardiner C, Small N, Payne S, Seamark D, Barnes S, et al. Barriers to advance care planning in chronic obstructive pulmonary disease. Palliat Med 2009;23: 642-8.
37 Spence A, Hasson F, Waldron M, Kernohan WG, McLaughlin D, Watson B, et al. Professionals delivering palliative care to people with COPD: qualitative study. Palliat Med 2009; 23:126-31.
38 Curtis JR, Engelberg R, Young JP, Vig LK, Reinke LF, Wenrich MD, et al. An approach to understanding the interaction of hope and desire for explicit prognostic information among individuals with severe chronic obstructive pulmonary disease or advanced cancer. J Palliat Med 2008; 11:610-20.
39 Barnes KA, Barlow CA, Harrington J, Ornadel K, Tookman A, King M, et al. Advance care planning discussions in advanced cancer: analysis of dialogues between patients and care planning mediators. Palliat Support Care 2011; 9:73-9.
40 Prendergast TJ. Advance care planning: pitfalls, progress, promise. Crit Care Med 2001; 29:N34-9.
41 National Institute for Health and Care Excellence. Dementia: supporting people with dementia and their carers in health and social care. CG42. 2006. http://guidance.nice.org.uk/CG42.
42 Poppe M, Burleigh S, Banerjee S. Qualitative evaluation of advanced care planning in early dementia (ACP-ED). PLoS One 2013; 8:e60412.
43 Callaghan D. Once again, reality: now where do we go? Hastings Cent Rep 995; 25:S33-6.
44 Robinson L, Dickinson C, Bamford C, Clark A, Hughes J, Exley C. A qualitative study: professionals’ experiences of advance care planning in dementia and palliative care, “a good idea in theory but . . .” Palliat Med 2013; 27:401-8.
45 Randall F. Advance care planning: ethical and clinical implications for hospital medicine. Br J Hosp Med 2011; 72:437-40.
46 Pantilat S, Steimle A. Palliative care for patients with heart failure. JAMA 2004;291: 2476-83.
47 Quill T. Initiating end-of-life discussions with seriously ill patients—addressing the elephant in the room. JAMA 2000; 284:2503-7.
48 Boddy J, Chenoweth L, McLennan V, Daly M. It’s just too hard! Australian health care practitioner perspectives on barriers to advance care planning. Aust J Prim Health
2013; 19:38-45.
49 Boyd K, Mason B, Kendall M, Barclay S, Chinn D, Thomas K, et al. Advance care planning for cancer patients in primary care: a feasibility study. Br J Gen Pract 2010; 60:e449-58.
50 Department for Constitutional Affairs. Mental Capacity Act 2005. Code of practice. 2007.
www.justice.gov.uk/downloads/protecting-the-vulnerable/mca/mca-code-practice-0509.
pdf.
51 National Archives. The Mental Health Act 1983. www.legislation.gov.uk/ukpga/1983/20/contents.
52 Smith CF, Riley J. Coordinate My Care: a clinical service for end-of-life care underpinned by an IT solution [electronic response to: There IT goes again. Cross M]. www.bmj.com/rapid-response/2011/11/03/coordinate-my-care-clinical-service-end-life-care-underpinnedit-solution.